Attention UH Listeners:

by Doug 0 Comments

Please note: There will be no podcast this week, as I am celebrating a birthday on Tuesday, Ed is still settling into his new Colorado spread, and most importantly, we need the week to work on some technical issues, to get back to the level of production quality that we’re used to and insist on. Thank you for your support & patience.

The next show, show #43, will be released on Tuesday, March 29th.

Cheers,

Doug Warren

Unhinged Podcast -Talking Mental

 

Unhinged Episode #042: Welcome Back

by Ed 2 Comments
Unhinged Episode #042: Welcome Back

After nearly 5 months, Unhinged is back! We took an extended hiatus due to various reasons, the most important being Doug’s terrible relapse. Over these past few months, Doug has been suffering greatly, but now there seems to be a spark of relief as his DBS starts working again. This all started after his surgery to replace the batteries in his DBS unit, which is apparently very sensitive. The surgery requires the device to be switched off, and when it came back on, it was no longer working the same way it was before. It took several months and lots of trial and error to get it to come back to life, but now there seems to be some hope.

During this time, Ed has also had a major life change by moving from California, where he’s been for the last 21 years, to Colorado, where a new adventure begins. The contrast between his positive life change and Doug’s hellish suffering is stark, but the friendship remains strong.

In this episode, we discuss all these changes and how Doug is coping now. It’s our “welcome back” show, so we’re still ironing out some technical issues, but we’re glad to be back!

Current State of the UHN Deep Brain Stimulation (DBS) Clinical Trial

by Doug 0 Comments

Deep brain stimulation (DBS) is currently the most powerful known treatment for major depression.  The technique itself was developed at the Toronto Western Hospital nearly 10 years ago.  It was based on research findings by neurologist Dr. Helen Mayberg, working with a multi-disciplinary team that included world-renowned neurosurgeon Dr. Andres Lozano, our own Clinic’s Co-Director, Dr. Peter Giacobbe, as well as UHN’s Psychiatrist-in-Chief, Dr. Sidney Kennedy.  Because DBS can often achieve remission where all other measures fail, the tecnhique is now being used to treat severe depression in advanced medical centres across Canada and around the world.

With DBS, a neurosurgeon implants a pair of electrodes into a small brain structure that is overactive in depression, called Area 25, or the subgenual cingulate.  The electrodes stimulate at a high frequency that effectively jams the signals passing through the neural connections in the region.  Once the electrodes are activated, many patients experience a rapid and dramatic improvement in symptoms — even patients who have not responded to any other treatment, including ECT.  However, DBS remains an experimental technique, available only to small numbers of patients, in medical centres with expert teams of neurosurgeons.  It also requires the electrodes to be permanently implanted in the brain and connected to a battery implanted under the collarbone — quite an invasive procedure compared to other treatments for depression.  For these reasons, DBS is usually reserved for cases where all other options have failed.

Unhinged Podcast is Back!

by Doug 2 Comments

Show #42 will be available everywhere, including at UnhingedPodcast.com, August 15th!

We’ve been on hiatus since March, as Doug has gone through a nasty & long relapse. With the help of the UHN Neuroscience & Neuropsychiatry team, it looks like there has been some signs of improvement, and we’re hoping that Doug will get back to that very good quality remission he’d experienced several months ago. Until the neuromodulator battery died and surgery was performed…and once again leading to a complete relapse.

We’ll get more in detail on his current status with show 42, as well as a couple of hot topics due for discussion, and more. We’re very excited to get things going again full-throttle. We want to thank you, our loyal listeners, fellow advocates and dear friends for being so patient and understanding during the ups & downs. Please know that we’re dedicated & passionate about what we’re doing, and we want to be with you every Tuesday, as we’d done for so long.

So, mark your calendars and don’t miss Show #42, it will be a real occasion for us, and we can’t wait to get back to doing what we do. “See” You Then!

Where We Are Right Now…

by Ed 2 Comments

Hello, Unhinged listeners. I know it’s been awhile since we’ve communicated, and even longer since we’ve put out a show. Lots of things have been keeping us from being able to get back into the swing of things.

First and foremost, Doug is still suffering from severe depression and anxiety ever since his DBS battery started dying and needed to be changed. Unfortunately, even after the battery was replaced, his remission has not kicked back in. His doctors are experimenting with different settings and intensities to see if it starts working again. In the meantime, I can only offer words of hope and encouragement to Doug as he struggles to regain a sense of normalcy.

Secondly, all this has been happening during my move out of the San Francisco Bay Area. After 21 years of living in California’s Silicon Valley, my wife and I have decided to move to Loveland, Colorado. Though I still love everything that Silicon Valley stands for, and have many friends there, we felt that it was the right time to leave. The Bay Area has been getting steadily more congested as more people move there, and continues to get more expensive. The time was right to sell our house and move somewhere that has more seasons, less traffic, and is more affordable. It also happens to be much closer to my employer in Golden, Colorado, which is another positive.

The move is complete but we’re still living out of boxes. I’m also waiting for a new desk to be delivered so I can set up my recording studio in preparation for our next show.

Thank you all for being so patient with us as Doug recovers and we get things back in order. We will be back as soon as we can. It’s just taking us a bit longer than expected. Thanks for understanding!

-Ed

Update: Still hoping…

by Ed 0 Comments

Hey there, Unhinged listeners and followers. I know it’s been a while since we’ve put out a show. We went on hiatus at the end of March when Doug’s DBS battery needed replacing. His mood dropped as the battery was dying, and unfortunately, it has not yet returned to comfortable levels after the surgery. Doug is still struggling for relief, and recently had the intensity of his DBS increased slightly in hopes of helping it kick in again.

We’re still waiting for his mood to increase. I have high hopes that it will improve in the coming weeks. Until then, we won’t be recording any shows to give Doug time to relax and heal. Any words of encouragement and hope are very much appreciated.

Ed
Co-founder/Co-host
Unhinged Podcast

Today’s Post-Surgery f/u with Dr. Peter Giacobbe

by Doug 0 Comments

Today I’ll be meeting with Dr. Peter Giacobbe, of the Neuroscience clinic at Toronto Western Hospital, for my post-surgery check-in and possible adjustments​ to the neuromodulator.

I’m hoping with everything I’ve got that the DBS, with the current settings, will resume working as it had done for over 3 months prior to the battery running low. It was by far the best quality remission (out of 3 total) that I’ve had to date.

#Hope is what I’m riding on…

“We must accept finite disappointment, but never lose infinite hope.” ~Martin Luther King, Jr 

~Doug

Unhinged Podcast -Talking Mental

Hope for Remission Continued…

Post-Surgery Update

by Ed 0 Comments

UPDATE: After Doug’s DBS battery-replacement surgery on March 27th, he started feeling better almost immediately. However, as we all know how unpredictable the brain can be, his mood has dropped significantly since then. We’ve seen this before, and as disheartening as it is right now, I truly believe it will turn around again and we can continue with his remission and recovery.

Thank you all for your continued support!

Ed
Co-founder/Co-host
Unhinged Podcast